Friday, January 8, 2010

A good day for an eye exam :-)

*Don't you love the pink dinosaur hospital jammies!

Today our Gabie Xulu had his eye exam in TC. They had to put him under in order to get a good look at his eye and measure his pressure. Gabe was so good with all of it. We went up to TC the night before as he had to be at the hospital between 6:30 and 6:45am and with the snow here I didn't want to leave the house at 4am to get there on time. My friend and Gabe's Ayi, Melissa went up with us and we had dinner at Olive Garden and enjoyed the Marriott's hot tub before bed. It was an early morning and Gabe was a happy and charming man for the first hour or so. He enjoyed going on a couple of tours meeting all the nurses with our head nurse, but after he got the second round of eye drops, which stung and really really dilated his eyes, he got pretty quiet and cuddly. The nurse that pre-admitted us on the phone the other day had said that I could stay with him until he was asleep, but they took him before, and he was a little leery, but he enjoyed the ride on the gurney! The nurse even made race car noises for him :-) In no time the doctor was coming out to see us and he was able to give us this info...
1. His pressure is great! The surgery in China was good, although China's paperwork declared him "cured", he will never be "cured". His pressure may go up in the future, but he has no way of know when or if it will, so it will always have to be checked. If it does go up, we will use drops to lower it.
2. He does have vision loss as a result of 8 months of high pressure/cloudy eyes. We won't know exactly how much until he is older. He really doesn't have much of a nystagmus (wobbley eyes) which is really good.
3. His prescription is right on, so we don't have to get new glasses right now :-) Yay!
4. We will see doctor ever 6 months, and once per year they will do this type of check. They will have to do the under anesthesia check for 3-4 more years. We will meet again with the doctor in June to talk about preschool and the fall as he will probably need an IEP and some support in school for his vision loss.
5. He will always wear glasses - which I already knew :-)

So, we were very happy with this and we love our doctor. We had just gotten home this afternoon when the doctor called to checked to see how he was doing. Everyone at the hospital was so kind and caring and helped make him as comfortable as possible.
Gabe tolerated the anesthesia well, but coming out of it was tough. They brought him around without me there and that was baaaaaaad! I have never seen him so distraught! He couldn't focus on me and was clawing his way out of his clothes, off of(first the nurse when I walked in and then me)-kicking and screaming for about 15 minutes! They got him a warm blanket and when he started to calm down, then I did what every guilty mom does-promised to go buy him a new toy!! And hey it helped, so I was ok with it! After a little bit they gave him his discharge instructions-no alcohol, no major decision making, and not to be left alone and we were good to go!

And yes, we stopped at Toys R Us and he got a new tractor! ;-)


  1. What great news! Praise God. What a cool nurse to make race noises for him on the gurney. I'm glad all went well. Love and hugs to all, Nai nai

  2. No major decisions! But he had to pick out a toy! LOL Glad it went so well. Kids are amazingly resilient!

  3. Good that they included the no alcohol thing. Really, for a pre-schooler?!?
    Glad to read that all is well. Thanks for the informative look at glaucoma too. I'm taking notes!

  4. My sister, Reese, (adopted from China at 2.5), has congenital glaucoma too. She has light sensitivity in her right eye, the one with glaucoma, but 20/20 in the other eye, so there's not point to glasses for her right now. She's had them before, to try and protect that left eye a bit, but she would never wear them so... *shrug*. She's 5 now, and they can do her pressure checks in office. They don't have to know her out for it. So I'd say keep trying, as he learns more English. Maybe you can stop doing EUAs sooner than you think. :D